List of biobanks

A biobank is a physical place which stores biobank specimens. In some cases, participant data is also collected and stored. Access policies details may vary across biobanks but generally involve obtaining ethics approval from institutional review boards and scientific review or peer review approval from the institutions under which the biobanks operate as well as Ethics approval from the institutions where the research projects will be undertaken. The samples and data are safeguarded so that researchers can use them in experiments deemed adequate. This page contains a list of biobanks.

Classification

Biobanks can be classified in several ways. Some examples of how they can be classified is by their controlling entity (government, commercial enterprise, or private research institution), by their geographical location, or by what sorts of samples they collect.

Biobanks may be classified by purpose or design. Disease-oriented biobanks usually have a hospital affiliation through which they collect samples representing a variety of diseases, perhaps to look for biomarkers affiliated with disease.[1] Population-based biobanks need no particular hospital affiliation because they sample from large numbers of all kinds of people, perhaps to look for biomarkers for disease susceptibility in a general population.[2]

This list is incomplete; you can help by expanding it.
List of biobanks
Biobank Affiliation Type Continent Founding Notes
Alberta Cancer Research Biobank Alberta Health Services non-profit North America 2010
Alberta Prostate Cancer Biorepository APCaRI non-profit North America 2014
Auria Biopankki University of Turku non-profit Europe 2015
Akateeminen Lääketiedekeskus Helsinki (AMCH) Biopankki HUSLAB non-profit Europe 2015
Autism Genetic Resource Exchange Autism Speaks non-profit North America and Asia
Avon Longitudinal Study of Parents and Children University of Bristol non-profit Europe 1990 [3][4]
BioGene Careggi University Hospital non-profit Europe 2008
Canadian Biosample Repository University of Alberta non-profit North America
CARTaGENE biobank Centre hospitalier universitaire Sainte-Justine non-profit North America 2009 [5][6]
EuroBioBank network non-profit Europe
Cell&Co Biorepository company commercial Europe 2012
Cooperative Human Tissue Network network government North America 1987
DeCODE genetics company commercial Europe [7]
Estonian Genome Project University of Tartu non-profit Europe 2000
Generation Scotland NHS Scotland government Europe 1999 [8][9]
Helsingin Urologinen Biopankki Institute for Molecular Medicine Finland FIMM IHUS non-profit Europe 2015
HUNT Biobank Norwegian University of Science and Technology non-profit Europe 2002
Human Tissue Resource Network Ohio State University non-profit North America 1975 [10]
Institutional Biobank of Lausanne University Hospital of Lausanne and University of Lausanne non-profit Europe 2013 [11][12][13]
IBBL (Integrated BioBank of Luxembourg) Public institution non-profit Europe 2008
Itä-Suomen Biopankki Pohjois-Savon Sairaanhoitopiiri KSSHP non-profit Europe 2015
Keski-Suomen Biopankki Keski-Suomen Sairaanhoitopiiri KSSHP and University of Jyvaskylä non-profit Europe 2015
Lab-Ally LLC company commercial North America 2013 [14]
nPOD (Network for Pancreatic Organ Donors with Diabetes) University of Florida, JDRF non-profit North America 2007 [15]
PATH Biobank foundation non-profit Europe 2002
Pohjois-Suomen biopankki Borealis Pohjois-Pohjanmaan sairaanhoitopiiri PPSHP etc. non-profit Europe 2015
Suomen Hematologinen Rekisteri ja Biopankki FHRB Finnish Hematology Association (SHY) etc. non-profit Europe 2015
Tampereen Biopankki FCBT Pirkanmaan sairaanhoitopiiri non-profit Europe 2015
THL Biopankki National Institute for Health and Welfare Finland non-profit Europe 2015
Tohoku Medical Megabank Organization Tohoku University non-profit Asia 2012
Tumor Tissue Repository non-profit North America - Canada 2004
UK Biobank private institution non-profit Europe 2006
UMass Cancer Center Tissue and Tumor Bank University of Massachusetts Medical School non-profit North America 2005

References

  1. Bevilacqua, G.; Bosman, F.; Dassesse, T.; Höfler, H.; Janin, A.; Langer, R.; Larsimont, D.; Morente, M. M.; Riegman, P.; Schirmacher, P.; Stanta, G.; Zatloukal, K.; Caboux, E.; Hainaut, P. (2010). "The role of the pathologist in tissue banking: European Consensus Expert Group Report". Virchows Archiv. 456 (4): 449–454. doi:10.1007/s00428-010-0887-7. PMC 2852521Freely accessible. PMID 20157825.
  2. Riegman, P. H. J.; Morente, M. M.; Betsou, F.; De Blasio, P.; Geary, P.; Marble Arch International Working Group on Biobanking for Biomedical Research (2008). "Biobanking for better healthcare". Molecular Oncology. 2 (3): 213–222. doi:10.1016/j.molonc.2008.07.004. PMID 19383342.
  3. Boyd, A.; Golding, J.; Macleod, J.; Lawlor, D. A.; Fraser, A.; Henderson, J.; Molloy, L.; Ness, A.; Ring, S.; Davey Smith, G. (16 April 2012). "Cohort Profile: The 'Children of the 90s'--the index offspring of the Avon Longitudinal Study of Parents and Children". International Journal of Epidemiology. 42 (1): 111–127. doi:10.1093/ije/dys064.
  4. Levitt, Mairi. "Relating to Participants: How Close Do Biobanks and Donors Really Want to Be?". Health Care Analysis. 19 (3): 220–230. doi:10.1007/s10728-011-0193-9.
  5. Awadalla, Philip; Catherine Boileau; Yves Payette; Youssef Idaghour; Jean-Philippe Goulet; Bartha Knoppers; Pavel Hamet; Claude Laberge (October 15, 2012). "Cohort profile of the CARTaGENE study: Quebec's population-based biobank for public health and personalized genomics" (PDF). International Journal of Epidemiology: 2. doi:10.1093/ije/dys160. Retrieved 3 April 2013.
  6. "Cartagene". cartagene.qc.ca. Retrieved 3 April 2013.
  7. "From Genes to Drugs". decode.com. deCODE genetics. Retrieved 2008-05-04.
  8. Smith BH, Campbell H, Blackwood D, et al. (2006). "Generation Scotland: the Scottish Family Health Study; a new resource for researching genes and heritability". BMC Medical Genetics. 7: 74. doi:10.1186/1471-2350-7-74. PMC 1592477Freely accessible. PMID 17014726.
  9. Macleod AK, Liewald DC, McGilchrist MM, Morris AD, Kerr SM, Porteous DJ (February 2009). "Some principles and practices of genetic biobanking studies". The European Respiratory Journal. 33 (2): 419–25. doi:10.1183/09031936.00043508. PMID 19181915.
  10. Hewitt, R. E. (2011). "Biobanking: The foundation of personalized medicine". Current Opinion in Oncology. 23 (1): 112–119. doi:10.1097/CCO.0b013e32834161b8. PMID 21076300. "Tissue Procurement Shared Resources" was founded in 1975, and that organization became a part of the later-created HTRN
  11. (French) Biobanque institutionnelle de Lausanne, www.chuv.ch (page visited on 16 November 2014).
  12. (French) Olivier Dessibourg, « Au CHUV, une nouvelle biobanque unique en Europe », Le Temps, Thursday 13 December 2012 (page visited on 16 November 2014).
  13. Swiss Biobanking Platform (page visited on 14 December 2015).
  14. Summary of Lab-Ally LLC Biospecimen Procurement and Lab Services Capabilities Retrieved 2014-02-21
  15. "JDRF nPOD | Network for Pancreatic Organ Donors with Diabetes". www.jdrfnpod.org. Retrieved 2016-09-22.

[1] www.jdrfnpod.org

External links

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